About Periodic Paralysis International

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Periodic Paralysis International and Our Mission

Periodic Paralysis International is a registered not-for-profit company based in Alberta, Canada, serving patients and physicians world-wide. Our organization is run entirely by volunteers. Our purpose is to disseminate timely, medically accurate and useful information, to provide supportive services, and to conduct and encourage research which enhances the quality of life for people with skeletal ion channelopathies, i.e. the periodic paralyses. 

Our Medical Advisory Council

The physicians and scientists who serve on Periodic Paralysis International's Medical Advisory Council are without question among the world's foremost authorities on the periodic paralyses and the cardiac, cognitive and physical issues which come with them. We are honored that they share with us and our members the gifts of their time, experience and knowledge. Read about the members of our Medical Advisory Council

Privacy Statement

Periodic Paralysis International Website, the HKPP Listserv and associated forums subscribe to HONcode Principles, including principles of confidentiality. Confidentiality of data relating to patients and visitors to this website is respected.  Read our commitment to your privacy

HonCode Information

The Periodic Paralysis International website is the official website of Periodic Paralysis International and the HKPP Listserv. The HKPP Listserv is an on-line group which has provided medically accurate, up-to-date information and peer support to patients who have been medically diagnosed with periodic paralysis, their families, caregivers and medical professionals since 1997. Read our HonCode information

Trust it or Trash it?

"Trust It or Trash It?" is a tool from the Genetic Alliance to help you think critically about the quality of health information (including websites, handouts, booklets, etc.). Click on Who said it? When did they say it? and How did they know? to guide you through the process of evaluating medical information you find on the web. 

Our History

The seed of Periodic Paralysis International was planted in mid-1995 with an e-mail between Deb Cavel-Greant and one other patient with periodic paralysis who found her reference to periodic paralysis on her page about her family tree. One by one, patients found Deb's page mentioning periodic paralysis, until the core group was formed.  Read our history