Our Patient Advisory Council

Our organization is guided by a volunteer council of patients and caregivers, under advisement from the body of our membership.

Our officers are:

  • President and HKPP Listserv Manager: Deb
  • Vice President and HKPP Listserv Manager: Don
  • Secretary and HKPP List Client Services Coordinator: Tina
  • Treasurer: Tony
  • Physicians' Liaison:  Loren
  • Public Relations and Strategic Planning: Lynn
  • Client Services; Britain: Liz
  • Website Design and Social Media: Zak

In addition: Our deep and sincere thanks to Lisa Wheeler, of Studio Y, Rye, New York for logo design, and to Ian Greant and to Rene Hache for hours and hours of hammering out code for our website.  Thanks guys, we couldn't have done it without you.