HKPP Listserv Page
We invite medically diagnosed patients to join the HKPP Listserv.
Our goals are:
- To support each other and share our experiences.
- To help each other develop effective management skills.
- To seek out and share reliable medical information.
The HKPP Listserv has subscribers from many different countries whose ages range across eight decades. The List is open to medically diagnosed patients, a patient's immediate family member or caregiver. This Listserv is not open to members of the general public. If you do not have a confirmed diagnosis but are in the diagnostic process please check the appropriate box below and supply your e-mail address. Client Services will e-mail an informative book to you free-of-charge covering the different forms of periodic paralysis, the diagnostic process, and other helpful information.
All HKPP List applicants are thoroughly screened to protect the privacy and medical confidentiality of its members. Applicants are asked to provide their name, a telephone number where they may be contacted by a List manager, and their postal address. These will be verified before your application is processed. All information which is provided is held in the strictest confidence. We do not sell, give away or in any other manner share or redistribute the information which is given to us by applicants.
If you feel uncomfortable sharing your personal information, please review our website at http://hkpp.org and decide for yourself if we appear trustworthy. We were established in 1996. We are a non-profit organization, members of the Genetic Alliance and of HonCode. Our Medical Advisory Council includes the world's most recognized experts in the field.We have never had a complaint of breached patient confidentiality.
The HKPP Listserv is monitored at all times by volunteer administrators. All members are bound by the Rules and Guidelines of the HKPP Listserv and may be removed at the discretion of the administrators.
Apply to join the Listserv
Patients and caregivers may apply to join the HKPP Listserv by filling out the form below. Our Client Services Coordinator will contact you within 48 hours.