Patient

Calibrating the Cardy isn't complicated. It's basically wash and rinse, wash and rinse.  

To clean the sensor you can use distilled water, which is a lot less expensive than buying refills of the "de-ionized" water that comes with the kit. And don't use their testing tape to clean the sensor. Buy Kleenex brand facial tissues in those little pocket packs. They are potassium-free, and work just fine.

To calibrate the meter first:

Anticipating the Baby

Expectant mothers and their doctors can take the secure thought that hundreds of women with periodic paralysis have been members of our Listserv since 1995, and an overwhelming majority of them have been mothers. To date not a single one has been unable to care for her child due to her periodic paralysis.

Dick's Story

For your convenience, arranged by topic, a "shelf" of journal articles on the periodic paralyses.

If you have a favorite link to suggest please pass it along.

Electrocardiographic Features in Andersen-Tawil Syndrome
Patients With KCNJ2 Mutations

Characteristic T-U–Wave Patterns Predict the KCNJ2 Genotype

Li Zhang, MD; D. Woodrow Benson, MD, PhD; Martin Tristani-Firouzi, MD; Louis J. Ptacek, MD;
Rabi Tawil, MD; Peter J. Schwartz, MD; Alfred L. George, MD; Minoru Horie, MD, PhD;
Gregor Andelfinger, MD; Gregory L. Snow, PhD; Ying-Hui Fu, PhD;
Michael J. Ackerman, MD, PhD; G. Michael Vincent, MD

This chapter from McGraw Hill's Myology, third edition; editors Andrew Engel and Clara Franzini-Armstrong,  give a comprehensive look at the nondystrophic myotonias and periodic paralyses, written by one of the world's top teams in the field.

Chapter from Myology, third edition: Nondystrophic Myotonias and Periodic Paralyses by Frank Lehmann-Horn, Reinhardt Rudel and Karin Jurkat-Rott.

Thank you Professor Dr. Lehmann-Horn, Dr. Jurkat-Rott and Dr. Rudel for your kind permission to include this valuable information on our website!

We receive a steady stream of mail from patients who suspect that they might have periodic paralysis, but cannot find a diagnosis. The periodic paralyses are a rare group of disorders. It's only common sense that medical schools spend time training students in diseases they will encounter frequently, like high blood pressure and cancer, not disorders they will probably never encounter in their entire practice.

Hospital Management Guidelines for Thyrotoxic Periodic Paralysis Patients

Patient's Name:

Birthdate: ________Height: _______Weight: _______

Address:

Primary Physician:

Emergency contact:  Your emergency contact should be someone who can speak for you when you cannot advocate for yourself.
Name:                                                                               Relationship:
home phone#                                         cell #                            FAX: