Patient

The Patient and Caretakers Section

Pursuing a Diagnosis of Periodic Paralysis:


A free workbook to download for those who are in the diagnostic process, contains information on each type of PP, diagnostic testing, available therapies, how to determine episode triggers and  work out a management plan. download here

Emergency Treatment of Thyrotoxic Hypokalemic Periodic Paralysis

First Actions:

  • Respiratory and cardiac arrest are possible. 
  • Call for Cardiac Monitoring/EKG
  • Draw electrolytes to determine serum K+
  • Thyroid studies
  • Provide 02 as thimble may not reflect 02 saturation due to cardiac dilitation
  • Lie patient in coma position to avoid aspiration. 

Emergency Treatment of the HyperKPP and/or PMC Attack

First Actions:

 

  • Respiratory and cardiac arrest are possible.
  • Call for Cardiac Monitoring/EKG
  • Draw electrolytes to determine serum K+
  • Provide 02 as thimble may not reflect 02 saturation 
  • Lie patient in coma position to avoid aspiration.

Hyperkalemic Periodic Paralysis and Paramyotonia Congenita can occur singly or in combination. 

Links out - Diagnosis and Management Information

Communication is key: Stephen Wilkins, MPH, writes of improving practice management through improved patient/physician communication and its impact on care, in Mind the Gap.

Role of Potassium in Maintaining Health


by Elson M. Haas, M.D.

Diet for Patients with HyperKPP and PMC

This information is based on diet recommendations found in many medical journal and textbook articles about Hyperkalemic Periodic Paralysis. (HyperKPP). According to physicians and dieticians those with HyperKPP should follow a diet which is high in carbohydrates and low in potassium. Because muscle tissue is stressed in the periodic paralyses it is also essential that patients obtain liberal amounts of high-quality protein.

Diet for Patients with Hypokalemic Periodic Paralysis

Designed by the National Institutes of Health    

This information is based on a diet designed at the National Institutes of Health in the 1960s for a young man with Hypokalemic Periodic Paralysis (HypoKPP). According to the NIH physicians and dietician Mary R. Emerson, plus many other medical authorities, those with HypoKPP should follow a diet which is high in protein, low in carbohydrate, and low in sodium.

Saliva to Serum Potassium Correlations

Correlation of Saliva and Human Blood Serum Potassium Results

The Cardy results are reported in ppm (parts per million), so saliva results are calculated by multiplying the saliva potassium measurements on the Cardy Potassium Meter by 0.026 to convert the values from ppm to mmol/L.

The correlation results are based on normal human ranges for blood serum as 3.5 - 5.5 mmol/L and for saliva as 8 - 40 mmol/L. The saliva values, as measured by the Cardy K+ meter, have proven accurate when compared to serum values drawn and processed in labs.

Testing Potassium Levels with the Cardy Potassium Ion Meter

It is now possible for the patient with periodic paralysis to test their potassium level at home, just as patients with diabetes test their glucose levels. The LAQUA potassium ion meter is not currently approved for medical use by the FDA, nor is it sold as a medical device, but it is the new and improved version of the Cardy C-131 Potassium Ion Meter, which was a very sensitive measuring device which has given excellent results to many patients in our group who have used it. Patients do not test their blood with these meters, but their saliva.

Thyrotoxic Hypokalemic Periodic Paralysis

Clinical Synopsis

Thyrotoxic periodic paralysis (THKPP) is an uncommon disorder characterized by simultaneous thyrotoxicosis, hypokalemia, and paralysis that occurs primarily in males of Asian descent, including patients of Japanese, Chinese, Vietnamese, Korean and Filipino ancestry.

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