Meet Our Patients

Irm's Story

The PPI's Client Services Representative in The Netherlands is Irm. Irm and her son were clinically diagnosed with HypoKPP-plus in Germany in September 2011, but she has had symptoms since she was a young child. At the age of 7, she told her parents, “My head is awake but my body still sleeps”. 

Letters from the Front Lines

There are times when a member says just the right thing, producing a post which is simply too good to let slide into obscurity. This is one of those posts;
Hi "A",

Life on a Roller Coaster

I am not my body!

Coping from the inside out

One way to cope with stress is to turn down our reaction to it through meditation. Meditation has been practiced in cultures all over the world for thousands of years. It's now being used with increasing frequency by western physicians and health care organizations to treat a diverse range of medical conditions.

What do I do now?

    The reaction to a diagnosis of periodic paralysis may be relief, shock, grief, despair, or any combination of emotions. It takes time to adjust to a chronic illness. Long cherished plans and dreams may have to be abandoned, some temporarily, others forever. For a time it may seem that the dominant focus in one's life is periodic paralysis, but as the news sinks in and adjustment comes a new balance can be achieved.

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