Submitted by deb on Fri, 08/09/2013 - 19:33
Children with Periodic Paralysis may require extra help or specialized services to be able to attend school. Laura Kaloi, Public Policy Director at the National Center for Learning Disabilities, explains the ins and outs of Individualized Education Programs (IEPs) in this video. For more information about IEPs, see "What Is an IEP?".
Submitted by deb on Sat, 11/19/2011 - 04:20
Anticipating the Baby
Expectant mothers and their doctors can take the secure thought that hundreds of women with periodic paralysis have been members of our Listserv since 1995, and an overwhelming majority of them have been mothers. To date not a single one has been unable to care for her child due to her periodic paralysis.
Submitted by deb on Sat, 07/02/2011 - 20:58
This chart allows comparison of the forms of primary periodic paralysis, symptoms, clinical and cardiac signs, effect of potassium, triggers and therapies.
Submitted by deb on Mon, 06/27/2011 - 22:45
Parents of some children with Periodic Paralysis will need to work with the school to achieve a plan which will allow their child to reach their full potential. The information in this article reflects the experiences of children in US schools. We hope it will be helpful to parents, school administrators, teachers, school nurses and physicians as they work together.
Submitted by deb on Mon, 06/27/2011 - 22:24
Life is a daily challenge for the child with periodic paralysis.
Periodic Paralysis poses unique problems for school-age youngsters. Because young PP patients usually look perfectly normal, and may even look extremely muscular and fit, it's hard for school staff to understand what a challenge daily life can be for them. But these children's strength may vary widely from day to day, even hour to hour, which is not just frustrating for teachers to cope with but extremely difficult for the child as well.
Submitted by deb on Mon, 06/27/2011 - 02:22
Hao Cheng, MD
The use of local anaesthetics on patients with periodic paralysis presents some unusual challenges. Many patients report that these agents trigger weakness or paralysis, a phenomenon which is substantiated in medical literature. Some patients also report that the agents do not produce the desired anaesthesia.
Submitted by deb on Mon, 06/27/2011 - 00:09
Part Four Case Studies - ATS
Patient #18 Two Pregnancies: ATS2;
Hypokalemic episodes Symptoms began in early childhood;
Are your symptoms worse with your menses? Yes
Pregnancy No 1: Age 32 Diagnosed at time of this pregnancy: No
Submitted by deb on Mon, 06/27/2011 - 00:04
Part Three Case Studies - HyperKPP and PMC
Patient #11 Two Pregnancies:
Familial HyperKPP and PMC Von Eulenburg Symptoms began at age of 11 years
Are your symptoms worse with your menses? No
Pregnancy No 1: Age 27
Diagnosed at time of this pregnancy: No
Submitted by deb on Sun, 06/26/2011 - 23:58
Part Two Case Studies - HypoKPP
Patient #1 Three Pregnancies:
Familial HypoKPP Symptoms began at age of 13 years with three paralytic episodes of 48-72 hour duration.
Are your symptoms worse with your menses? No
Pregnancy No 1: Age 20
Diagnosed at time of this pregnancy: Yes
Episodes consisted of minor weakness and fatigue once or twice a month. No medications during pregnancy. Maintained normal activity. Uncomplicated labour with forceps delivery of 7 lb. healthy male child three weeks short of due date.
Submitted by deb on Sun, 06/26/2011 - 22:54
Part One
There is little available medical literature to guide the physician in the care of the pregnant patient who has periodic paralysis. The first part of this packet consists of abstracts and quotations drawn from current literature. But this information is limited. Because Periodic Paralysis International has a number of clients who have given birth we felt it might be helpful to survey them about their experiences. The second, third and forth parts of this packet consists of case studies of women with periodic paralysis who have given birth.
