Links out – Diagnosis and Management Information

Submitted by deb on Wed, 07/20/2011 – 19:51 Communication is key: Stephen Wilkins, MPH, writes of improving practice management through improved patient/physician communication and its impact on care, in Mind the Gap. Practical aspects in the management of hypokalemic periodic paralysis.   Author: Jacob O Levitt MD; Management considerations in hypokalemic periodic paralysis include accurate diagnosis, potassium dosage for acute attacks,…

Hospital Management Guidelines – ATS

Submitted by deb on Sun, 07/03/2011 – 23:21 Hospital Management Guidelines for Patients with Andersen-Tawil Syndrome Patient’s Name: Birthdate: ________Height: _______Weight: _______ Address: Primary Physician: Emergency contact:  Name:                                             Relationship: home phone#                                         cell #                            FAX: PRECAUTIONS:…

The Use of Bactrim in the Periodic Paralyses

Submitted by deb on Sat, 07/25/2015 – 18:54 The antibiotic Bactrim is well-known to produce muscle weakness, even paralysis in patients with Hypokalemic Periodic Paralysis. It is contraindicated in patients with Anderson-Tawil Syndrome because of its propensity to produce cardiac arrhythmia, but many clinicians do not realize that it also produces hyperkalemia in a majority of patients…

Anaesthesia and peri-operative care in the primary Periodic Paralysis Disorders

Submitted by deb on Tue, 04/12/2016 – 22:54 Adverse reactions to anaesthesia, including life-threatening events, are a serious concern for patients with Periodic Paralysis Disorders. Many of our patients report serious events associated with anesthesia and side effects which may linger for days to months. There is rarely time for a surgical team to comb through journals…

Measuring quality of life impairment in periodic paralyses

Submitted by deb on Tue, 07/03/2012 – 18:45 
Measuring quality of life impairment in skeletal muscle channelopathies.
 Eur J Neurol. 2012 May 19. doi: 10.1111/j.1468-1331.2012.03751.x. [Epub ahead of print] Sansone VA, Ricci C, Montanari M, Apolone G, Rose M, Meola G; INQoL Group.
SourceDepartment of Neurology, University of Milan, IRCCS Policlinico San Donato, Milan, Italy.
 Abstract   Link to…

Anesthesia and Peri-Operative Care in the primary Periodic Paralysis Disorders. Part 1: A Review of the Literature

Anesthesia and Peri-Operative Care in the primary Periodic Paralysis Disorders. Part 1: A Review of the Literature

Annabelle SJ Baughan [1] MB FRCP FRCPath,Deborah Cavel-Greant [1],Janice Megalo [1] AAS-MAA, andFrank Weber [2] MD PhD.[1] Periodic Paralysis International (www.hkpp.org)[2] Colonel, Medical Service (Neurology), German Air Force. Military Hospital (Bundeswehrkrankenhaus), 89081 Ulm, & German Air Force Center of Aerospace Medicine, D-82256 Fürstenfelbruck. Medical Adviser, Periodic Paralysis Association;Corresponding author: ASJ Baughan@gmail.com With grateful acknowledgement to…

Anesthesia and Peri-Operative Care  in the primary Periodic Paralysis Disorders. PART 2: Practical Guidelines

Anesthesia and Peri-Operative Care in the primary Periodic Paralysis Disorders. PART 2: Practical Guidelines

Annabelle SJ Baughan [1] MB FRCP FRCPath,Deborah Cavel-Greant [1],Janice Megalo [1] AAS-MAA, andFrank Weber [2] MD PhD.[1] Periodic Paralysis International (www.hkpp.org)[2] Colonel, Medical Service (Neurology), German Air Force. Military Hospital (Bundeswehrkrankenhaus), 89081 Ulm, & German Air Force Center of Aerospace Medicine, D-82256 Fürstenfelbruck. Medical Adviser, Periodic Paralysis Association;Corresponding author: ASJ Baughan@gmail.com With grateful acknowledgement to…