The Life and Death of Aleksandr Batutenko
Submitted by deb on Mon, 01/21/2013 – 18:12 This article is dedicated to the memory of Aleksandr Batutenko, a person who was not afraid to declare publicly his rare disease. It was written by Aleksandr Batutenko’s wife Nadezhda, and it is published here with her permission. Aleksandr was a brave young man who lost his life trying…