*Life on a roller coaster

I am not my body! When you have a chronic illness it’s important to cultivate a positive self-image. Even though there may be changes in a person’s capabilities to perform certain tasks it’s important to remember, “I have a body, but I am not my body.”  Your body may find itself strong or weak, it…

But you look so normal!

Submitted by deb on Tue, 07/05/2011 – 15:55 Stories We Tell are e-mail exchanges written by our List members. In this exchange patients discuss the difficulties of see-sawing between between looking fine and lying in a heap somewhere, not always in the place of our own choosing. Imagine walking a 2 x 4 plank spanning the open space…

Letters from the Front Lines

Submitted by deb on Sat, 08/06/2011 – 23:52 There are times when a member says just the right thing, producing a post which is simply too good to let slide into obscurity. This is one of those posts;— Hi “A”, Many of us are on this path – You are at the place signposted, ‘Anger and Frustration’, near…