Resource Hub

The PPI’s Resource Hub

One of the core missions of Periodic Paralysis International is to serve as a trusted documentation resource for all aspects of Periodic Paralysis. This library brings together materials created for both patients and health care providers, along with carefully selected links to outside resources.

This is an ongoing project, designed to grow and evolve for many years to come. While we are just getting started, new material will continue to be added on a regular basis. Our goal is to provide a comprehensive, reliable, and accessible source of information to support both medical professionals and the PP community

Disclaimer: The resources in this library are provided for informational purposes only. Periodic Paralysis International does not guarantee the accuracy or completeness of this material. Content should not be used as a substitute for professional medical advice, diagnosis, or treatment. Always consult your physician or qualified health care provider regarding any medical questions or concerns.

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The Life and Death of Aleksandr Batutenko

Hypokalemic Hypokalemic – Story
Submitted by deb on Mon, 01/21/2013 – 18:12 This article is dedicated to the memory of Aleksandr Batutenko, a person who was not afraid to declare publicly…
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Management Strategies For Hypokalemic Periodic Paralysis

Hypokalemic Hypokalemic – Management
Management Strategies For Hypokalemic Periodic Paralysis Submitted by deb on Fri, 08/26/2011 – 20:09 In 2009 Professor Dr. Frank Lehmann-Horn of Ulm University, Ulm Germany, gave a presentation on…
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Did Elizabeth Barrett Browning Have Hypokalemic Periodic Paralysis?

Hypokalemic Hypokalemic – Journal Articles
Submitted by deb on Tue, 07/03/2012 – 18:31 Penn State researcher counts the ways poetess Browning may have had rare diseaseBy Tom Avril; Philadephia Inquirer Staff Writer Scholars…
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Bumetanide potential treatment for HypoKPP

Hypokalemic Hypokalemic – Journal Articles Hypokalemic – Medications
Submitted by deb on Tue, 03/05/2013 – 00:34 Neurology. 2013 Feb 20. [Epub ahead of print]Bumetanide prevents transient decreases in muscle force in murine hypokalemic periodic paralysis.Wu…
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Dichlorphenamide: A Review in Primary Periodic Paralyses.

Andersen-Tawil Andersen-Tawil – Journal Articles Hyperkalemic Hyperkalemic – Journal Articles Hypokalemic Hypokalemic – Journal Articles
Submitted by deb on Sun, 11/09/2014 – 21:46 Dichlorphenamide: A Review in Primary Periodic Paralyses. Greig SL; Drugs. 2016 Mar;76(4):501-7. doi: 10.1007/s40265-016-0559-2. Abstract Oral dichlorphenamide (Keveyis™) is…
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GUIDELINES ved indlæggelse for Hypokalemisk Periodika Paralyse Patient

Hypokalemic Hypokalemic – Management
Submitted by deb on Mon, 05/19/2014 – 21:54 GUIDELINES ved indlæggelse for Hypokalemisk Periodika Paralyse Patient Navn & CPRnrHøjde:  cmVægt:  kgAdresse:Egen læge:Emergency contact: navn (tlf: )+ evt…
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Colonoscopy Prep Protocol for Patient with Hypokalemic Periodic Paralysis

Hypokalemic Hypokalemic – Emergency Care Hypokalemic – Management
Submitted by deb on Mon, 06/27/2011 – 04:39 The regular colonoscopy prep can cause a hypokalemic episode in a patient with hypokalemic periodic paralysis. This colonoscopy prep,…
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Severe respiratory phenotype in a patient with HypoKPP

Hypokalemic Hypokalemic – Emergency Care Hypokalemic – Journal Articles
Submitted by deb on Fri, 03/01/2013 – 17:49 Severe respiratory phenotype caused by a de novo Arg528Gly mutation in the CACNA1S gene in a patient with hypokalemic…
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The Abortive Attack – Weakness Between Attacks

Hypokalemic Hypokalemic – Basic Reading Myotonias Myotonias – Basic Reading
Submitted by deb on Mon, 06/27/2011 – 23:16 Are Weakness and Fatigue Between Paralytic Attacks Symptoms of Periodic Paralysis? Patients frequently report that their physician denies that…
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A Quick Overview of Hypokalemic Periodic Paralysis

Hypokalemic Hypokalemic – Basic Reading Hypokalemic – Diagnosis Hypokalemic – Emergency Care
Submitted by deb on Thu, 06/21/2012 – 16:31 1) Patient has “attacks” of weakness and/or floppy paralysis. 2) First attacks occur by the age of 16 in…
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Pregnancy and Birth in Hyperkalemic PP

Hyperkalemic Hyperkalemic – Surveys Myotonias Myotonias – Surveys
Submitted by deb on Mon, 06/27/2011 – 00:04 Part Three Case Studies – HyperKPP and PMC Patient #11 Two Pregnancies: Familial HyperKPP and PMC Von Eulenburg Symptoms…
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Malignant Hyperthermia and HyperKPP/PMC

Hyperkalemic Hyperkalemic – Emergency Care Myotonias Myotonias – Emergency Care
Submitted by deb on Mon, 06/27/2011 – 20:16 Patients with Sodium channel HyperKPP and PMC mutations are at increased risk of Malignant Hyperthermia; It has long been recognized…
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