Resource Hub

The PPI’s Resource Hub

One of the core missions of Periodic Paralysis International is to serve as a trusted documentation resource for all aspects of Periodic Paralysis. This library brings together materials created for both patients and health care providers, along with carefully selected links to outside resources.

This is an ongoing project, designed to grow and evolve for many years to come. While we are just getting started, new material will continue to be added on a regular basis. Our goal is to provide a comprehensive, reliable, and accessible source of information to support both medical professionals and the PP community

Disclaimer: The resources in this library are provided for informational purposes only. Periodic Paralysis International does not guarantee the accuracy or completeness of this material. Content should not be used as a substitute for professional medical advice, diagnosis, or treatment. Always consult your physician or qualified health care provider regarding any medical questions or concerns.

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Pregnancy and Birth in Andersen-Tawil Syndrome

Andersen-Tawil Andersen-Tawil – Surveys Children's Issues Children's Issues – Children Children's Issues – Surveys
Submitted by deb on Mon, 06/27/2011 – 00:09 Part Four Case Studies – ATS Patient #18 Two Pregnancies: ATS2; Hypokalemic episodes Symptoms began in early childhood; Are your symptoms…
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Physician’s Sheet: Acetazolamide Drug Interactions

Andersen-Tawil Andersen-Tawil – Medications Hyperkalemic Hyperkalemic – Medications Hypokalemic Hypokalemic – Medications Myotonias Myotonias – Medications Normokalemic Normokalemic – Medications Other Resources Other Resources – Journal Articles Scientific
Submitted by deb on Mon, 06/27/2011 – 20:54 Acetazolamide (aka Diamox) is frequently prescribed as therapy for the periodic paralyses. While most patients take this drug without…
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The Use of Bactrim in the Periodic Paralyses

Andersen-Tawil Andersen-Tawil – Management Andersen-Tawil – Medications Hyperkalemic Hyperkalemic – Management Hyperkalemic – Medications Hypokalemic Hypokalemic – Management Hypokalemic – Medications Myotonias Myotonias – Management Myotonias – Medications Normokalemic Normokalemic – Management Normokalemic – Medications Thyrotoxic Thyrotoxic – Management Thyrotoxic – Medications
Submitted by deb on Sat, 07/25/2015 – 18:54 The antibiotic Bactrim is well-known to produce muscle weakness, even paralysis in patients with Hypokalemic Periodic Paralysis. It is…
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Sleep Complaints in Periodic Paralysis

Andersen-Tawil Andersen-Tawil – Journal Articles Hyperkalemic Hyperkalemic – Journal Articles Hypokalemic Hypokalemic – Journal Articles Myotonias Myotonias – Journal Articles Normokalemic Normokalemic – Journal Articles Other Resources Other Resources – Journal Articles Scientific Thyrotoxic Thyrotoxic – Journal Articles
Submitted by deb on Mon, 06/27/2011 – 02:57 Giorgio Buzzi, MD, Neurologist Buzzi G, Mostacci B, Sancisi E, Cirignotta F. Sleep complaints in Periodic Paralyses: a web survey….
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Physician’s Reading Room

Andersen-Tawil Andersen-Tawil – Journal Articles Hyperkalemic Hyperkalemic – Journal Articles Hypokalemic Hypokalemic – Journal Articles Myotonias Myotonias – Journal Articles Normokalemic Normokalemic – Journal Articles Other Resources Other Resources – Journal Articles Scientific Thyrotoxic Thyrotoxic – Journal Articles
Submitted by deb on Wed, 09/07/2011 – 03:04 For your convenience, arranged by topic, a “shelf” of journal articles on the periodic paralyses. If you have a…
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New Findings Suggest Genetics Behind Drug Response

Andersen-Tawil Andersen-Tawil – Journal Articles Andersen-Tawil – Medications Hyperkalemic Hyperkalemic – Journal Articles Hyperkalemic – Medications Hypokalemic Hypokalemic – Journal Articles Hypokalemic – Medications Myotonias Myotonias – Journal Articles Myotonias – Medications Normokalemic Normokalemic – Journal Articles Normokalemic – Medications Other Resources – Journal Articles Scientific Thyrotoxic Thyrotoxic – Journal Articles Thyrotoxic – Medications
Submitted by deb on Thu, 07/26/2012 – 17:00 PLoS One. 2012; 7(7): e40235.Published online 2012 July 10. Splicing of the rSlo Gene Affects the Molecular Composition and…
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Leaky Channels make weak muscles

Andersen-Tawil Andersen-Tawil – Journal Articles Hypokalemic Hypokalemic – Journal Articles Myotonias Myotonias – Journal Articles Scientific Thyrotoxic Thyrotoxic – Journal Articles
Submitted by deb on Wed, 03/13/2013 – 18:08 Leaky channels make weak muscles: Mutations in the skeletal muscle voltage-gated calcium channel (CaV 1.1) have been associated with hypokalemic…
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Physician’s Information: Local Anaesthesia

Andersen-Tawil Andersen-Tawil – Emergency Care Children's Issues Children's Issues – Emergency Care Hyperkalemic Hyperkalemic – Emergency Care Hypokalemic Hypokalemic – Emergency Care Myotonias Myotonias – Emergency Care Normokalemic Normokalemic – Emergency Care Scientific Thyrotoxic Thyrotoxic – Emergency Care
Submitted by deb on Mon, 06/27/2011 – 02:22 Hao Cheng, MD    The use of local anaesthetics on patients with periodic paralysis presents some unusual challenges. Many patients…
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Malignant Hyperthermia

Andersen-Tawil Andersen-Tawil – Emergency Care Children's Issues Children's Issues – Emergency Care Hyperkalemic Hyperkalemic – Emergency Care Hypokalemic Hypokalemic – Emergency Care Myotonias Myotonias – Emergency Care Normokalemic Normokalemic – Emergency Care Thyrotoxic Thyrotoxic – Emergency Care
Submitted by deb on Mon, 06/27/2011 – 19:16 Periodic Paralysis Patients at Increased Risk of MH Patients with Hyperkalemic periodic paralysis and Paramyotonia Congenita are at increased…
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Tracking Triggers – Food and Beverage Chart

Andersen-Tawil Andersen-Tawil – Diet Hypokalemic Hypokalemic – Diet
Submitted by deb on Sun, 07/03/2011 – 00:24 Use this chart to help determine patterns to your food triggers. Blanks have been left for you to individualize…
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Low Sodium, Low Carb Ideas for Hypokalemic Periodic Paralysis

Andersen-Tawil Andersen-Tawil – Diet Hypokalemic Hypokalemic – Diet
Submitted by deb on Mon, 07/04/2011 – 00:04 People with Hypokalemic periodic paralysis, and some Andersen-Tawil Syndrome patients, need to eat a diet low in carbohydrates and…
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Diet for Patients with Hypokalemic Periodic Paralysis

Andersen-Tawil Andersen-Tawil – Diet Hypokalemic Hypokalemic – Diet Thyrotoxic Thyrotoxic – Diet
Submitted by deb on Sun, 07/17/2011 – 20:38 Designed by the National Institutes of Health   This information is based on a diet designed at the National Institutes…
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