Resource Hub

The PPI’s Resource Hub

One of the core missions of Periodic Paralysis International is to serve as a trusted documentation resource for all aspects of Periodic Paralysis. This library brings together materials created for both patients and health care providers, along with carefully selected links to outside resources.

This is an ongoing project, designed to grow and evolve for many years to come. While we are just getting started, new material will continue to be added on a regular basis. Our goal is to provide a comprehensive, reliable, and accessible source of information to support both medical professionals and the PP community

Disclaimer: The resources in this library are provided for informational purposes only. Periodic Paralysis International does not guarantee the accuracy or completeness of this material. Content should not be used as a substitute for professional medical advice, diagnosis, or treatment. Always consult your physician or qualified health care provider regarding any medical questions or concerns.

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*Anesthesia in Hypokalemic Periodic Paralysis

Hypokalemic – Emergency Care
Provided by Frank Lehmann-Horn MD, PhD From: Lehmann-Horn F, Rüdel R, Jurkat-Rott K. Chapter 46: Nondystrophic myotonias and periodic paralyses. In: Myology, edited by AG…
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*Emergency Treatment for a Hypokalemic Paralytic Attack

Hypokalemic – Emergency Care
Paralytic attacks of Hypokalemic Periodic Paralysis can cause cardiac and/or respiratory distress or arrest.  Patients may become unable to cough and may choke on their…
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*Emergency Care HyperKPP & PMC

Hyperkalemic – Emergency Care
Emergency Treatment of the HyperKalemic Periodic Paralysis and/or Paramyotonia Congenita Attack First Actions: Hyperkalemic Periodic Paralysis and Paramyotonia Congenita can occur singly or in combination.  While most…
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*Emergency Treatment of Andersen-Tawil Syndrome

Andersen-Tawil – Emergency Care Emergency Care
First Actions: Monitor closely, weakness can rapidly progress to paralysis, torsades de pointes, cardiac arrest and respiratory failure. Paralyzed patients may appear to be unconscious,…
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*Emergency Treatment of Thyrotoxic Hypokalemic Periodic Paralysis

Thyrotoxic – Emergency Care
First Actions: A True Endocrine Emergency Patients with Thyrotoxic Hypokalemic Periodic Paralysis typically present at the ER with an acute episode of paralysis involving the…
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Thyrotoxic Hypokalemic Periodic Paralysis

Thyrotoxic Thyrotoxic – Basic Reading
Submitted by deb on Sun, 07/17/2011 – 19:37 Clinical Synopsis Thyrotoxic periodic paralysis (THKPP) is an uncommon disorder characterized by simultaneous thyrotoxicosis, hypokalemia, and paralysis that occurs…
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Paramyotonia Congenita & Paramyotonia Syndromes

Myotonias Myotonias – Basic Reading
Submitted by deb on Sun, 06/26/2011 – 00:05 Paramyotonia Congenita (PMC) is one of the periodic paralyses caused by mutations in the sodium channel. PMC causes muscle…
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Focal and abnormally persistent paralysis associated with congenital paramyotonia

Myotonias Myotonias – Children
Submitted by deb on Sun, 11/09/2014 – 21:32 Focal and abnormally persistent paralysis associated with congenital paramyotonia. Magot A1, David A2, Sternberg D3, Péréon Y1. British Medical…
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Rare Disorder Groups Are Vital To Physicians

Andersen-Tawil Andersen-Tawil – Journal Articles Hyperkalemic Hyperkalemic – Journal Articles Hypokalemic Hypokalemic – Journal Articles Other Resources Other Resources – Journal Articles
Submitted by deb on Tue, 06/28/2011 – 02:56 The Importance to Physicians of Support Groups for Rare Conditions The Genetic Drift Vol. 8: Winter, 1992 Consumer Issues…
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Links out – Diagnosis and Management Information

Andersen-Tawil Andersen-Tawil – Diagnosis Andersen-Tawil – Management Hyperkalemic Hyperkalemic – Diagnosis Hyperkalemic – Management Hypokalemic Hypokalemic – Diagnosis Hypokalemic – Management Other Resources Other Resources – Journal Articles
Submitted by deb on Wed, 07/20/2011 – 19:51 Communication is key: Stephen Wilkins, MPH, writes of improving practice management through improved patient/physician communication and its impact on care,…
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Long-time exercise test in the diagnosis of periodic paralysis

Andersen-Tawil Andersen-Tawil – Diagnosis Hyperkalemic Hyperkalemic – Diagnosis Hypokalemic Hypokalemic – Diagnosis
Submitted by deb on Fri, 01/16/2015 – 00:37 Ding Z, Liu M, Cui L. Reference value of long-time exercise test in the diagnosis of primary periodic paralysis….
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Pregnancy and Birth in HypoKPP

Hypokalemic Hypokalemic – Children Hypokalemic – Surveys
Submitted by deb on Sun, 06/26/2011 – 23:58 Part Two Case Studies – HypoKPP Patient #1 Three Pregnancies: Familial HypoKPP Symptoms began at age of 13 years with…
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