Resource Hub - Periodic Paralysis International

The PPI’s Resource Hub

One of the core missions of Periodic Paralysis International is to serve as a trusted documentation resource for all aspects of Periodic Paralysis. This library brings together materials created for both patients and health care providers, along with carefully selected links to outside resources.

This is an ongoing project, designed to grow and evolve for many years to come. While we are just getting started, new material will continue to be added on a regular basis. Our goal is to provide a comprehensive, reliable, and accessible source of information to support both medical professionals and the PP community

Disclaimer: The resources in this library are provided for informational purposes only. Periodic Paralysis International does not guarantee the accuracy or completeness of this material. Content should not be used as a substitute for professional medical advice, diagnosis, or treatment. Always consult your physician or qualified health care provider regarding any medical questions or concerns.

Browse By Category

Diet for Patients with HyperKPP and PMC

Hyperkalemic Hyperkalemic – Diet Myotonias Myotonias – Diet

Submitted by deb on Sun, 07/17/2011 – 21:14 This information is based on diet recommendations found in many medical journal and textbook articles about Hyperkalemic Periodic Paralysis….

Summary of Hyperkalemic Periodic Paralysis

Hyperkalemic Hyperkalemic – Basic Reading Hyperkalemic – Management

Submitted by deb on Tue, 06/28/2011 – 21:14 Clinical Signs Hyperkalemic Periodic Paralysis is a genetically determined disorder which causes attacks of weakness and flaccid paralysis. Attacks…

Meet Our Patients

Hypokalemic Hypokalemic – Coping Hypokalemic – Story

Submitted by deb on Wed, 10/12/2011 – 23:03 Irm’s Story The PPI’s Client Services Representative in The Netherlands is Irm. Irm and her son were clinically diagnosed…

Pregnancy and Birth in HypoKPP

Children's Issues Children's Issues – Children Children's Issues – Surveys Hypokalemic Hypokalemic – Children Hypokalemic – Surveys

Submitted by deb on Sun, 06/26/2011 – 23:58 Part Two Case Studies – HypoKPP Patient #1 Three Pregnancies: Familial HypoKPP Symptoms began at age of 13 years with…

Pregnancy and Birth in Hyperkalemic PP

Children's Issues Children's Issues – Surveys Hyperkalemic Hyperkalemic – Children Hyperkalemic – Surveys Myotonias Myotonias – Children Myotonias – Surveys

Submitted by deb on Mon, 06/27/2011 – 00:04 Part Three Case Studies – HyperKPP and PMC Patient #11 Two Pregnancies: Familial HyperKPP and PMC Von Eulenburg Symptoms…

Meal Plan Template

Andersen-Tawil Andersen-Tawil – Diet Hyperkalemic Hyperkalemic – Diet Hypokalemic Hypokalemic – Diet Myotonias Myotonias – Diet Normokalemic Normokalemic – Diet Other Resources Other Resources – Diet Thyrotoxic Thyrotoxic – Diet

Submitted by deb on Sun, 07/03/2011 – 23:34 When I’m in the middle of an abortive attack meal planning goes right out the window. I can look…

Role of Potassium in Maintaining Health

Submitted by deb on Sun, 07/17/2011 – 21:31 by Elson M. Haas, M.D. Potassium is a very significant body mineral, important to both cellular and electrical function….

Pain in the Periodic Paralyses

Andersen-Tawil Andersen-Tawil – Surveys Children's Issues Children's Issues – Surveys Hyperkalemic Hyperkalemic – Surveys Hypokalemic Hypokalemic – Surveys Myotonias Myotonias – Surveys Normokalemic Scientific Thyrotoxic Thyrotoxic – Surveys

Submitted by deb on Sat, 06/25/2011 – 23:22 Pain Often Overlooked Pain is an often overlooked component of the periodic paralyses. Patients who report muscle pain in…

Myoclonus Survey Part 2

Andersen-Tawil Andersen-Tawil – Surveys Hyperkalemic Hyperkalemic – Surveys Hypokalemic Hypokalemic – Surveys Myotonias Myotonias – Surveys

Submitted by deb on Sun, 06/26/2011 – 22:39 Description of Myoclonus Here is a description of myoclonus by Joseph Jankovic, M.D: Myoclonus describes a symptom and generally is not…

Myoclonus Survey in Periodic Paralysis Patients Part 1

Andersen-Tawil Andersen-Tawil – Surveys Hyperkalemic Hyperkalemic – Surveys Hypokalemic Hypokalemic – Surveys Myotonias Myotonias – Surveys Normokalemic Scientific

Submitted by deb on Sun, 06/26/2011 – 22:13 Myoclonus is the sudden, involuntary jerking of a muscle or group of muscles. Myoclonic jerks may occur alone or…

Pregnancy and Birth in the Periodic Paralysis Patient

Andersen-Tawil Andersen-Tawil – Children Andersen-Tawil – Surveys Children's Issues Children's Issues – Children Children's Issues – Surveys Hyperkalemic Hyperkalemic – Children Hyperkalemic – Surveys Hypokalemic Hypokalemic – Children Hypokalemic – Surveys Myotonias Myotonias – Children Myotonias – Surveys Normokalemic

Submitted by deb on Sun, 06/26/2011 – 22:54 Part One There is little available medical literature to guide the physician in the care of the pregnant patient…

Survey of 64 Periodic Paralyses Patients

Andersen-Tawil Andersen-Tawil – Surveys Hyperkalemic Hyperkalemic – Surveys Hypokalemic Hypokalemic – Surveys Myotonias Myotonias – Surveys Normokalemic Thyrotoxic Thyrotoxic – Surveys

Submitted by deb on Mon, 06/27/2011 – 00:31 In July of 1998 we conducted a survey of 64 self-reported clinically diagnosed periodic paralysis patients, all members of…

« Previous 1 … 3 4 5 6 7 8 Next »